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Dad's home!

on September 21, 2018

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Just to those following ... he's home and recovering. Thanks for the love!

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MarianneSeptember 23, 2018 at 5:40 AM
Glad to hear.
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Hospice care & keeping things normal

Vintage wallpaper in my parents' front hall. It seems I always post the same update. I don't mean for my posts to be cryptic, but I don't like to bring people down. Mom is very peaceful and, I think, not in pain (unless she tries to move in bed, in which case she grimaces as if she's doing CrossFit). Her body is tired, but strong, and it is taking a long time to shut down. Hospice has said she is in the "hours to days" part -- though, because she is so strong, she's been in this phase for two weeks. Pancreatic cancer is a beast, and it is hard to watch. If you haven't dealt with Hospice care, you may not know how amazing they are. It angers me that such good one-on-one home care isn't really available here (and certainly not for free) until you are dying, but I'm grateful for the caring nurses, social workers, and bath aides who have made the past month easier on our family. Patsy has mostly been asleep since the 17th of August. She...

Updates on the cancer patients

Queen-sized hospital bed in the dining room. Please ignore/enjoy the amazing paint job. We all know it's awful, but, ugh, cancer. I'm so thankful for David's hard work in clearing out the dining room a couple of weeks ago. And thank you for the donations. With them we were able to purchase an adjustable bedframe for my parents and a few other home health supplies. The bed works with a queen-sized mattress we already have, but has a remote control and operates like a hospital bed. Mom was ready for the hospital bed, but my parents do not want to be separated. I feel like, for Dad's recovery time as well, being able to snuggle with Mom is important. And you can't snuggle in a twin hospital bed. So this is our version of a Queen-sized hospital bed. It's allowed her to sleep downstairs, but sit up without great effort when a friend visits. There are plenty of chairs around her bed, so even her Book Club came to sit with her last week. Today seems a little...

Overview of Dad’s health and plan

Kenny has been quiet about how he’s doing because he feels like crap and doesn’t want to bother anyone. He also does not want me “spreading morbid rumors,” which is a direct quote. I am going to share what I know because I keep getting many many many messages and feel guilty that I can’t respond to them individually (i can’t even get it together to go to the grocery, much less get my inbox to zero). I’ll stick to the facts without flourish or drama (I PROMISE, DAD, if you’re reading this). He has a recurrence of the Squamous Cell Carcinoma of the sinus. SCC are technically a skin cancer, but his SCC had nothing to do with sun exposure. Sinus cancers are rare — only about 2000 cases a year — and are caused by environmental exposure to hazardous chemicals. Dad spent many years as a chemist and working with hazardous waste disposal (which i used to think meant “mafia,” but apparently it literally means hazardous waste disposal), so he certainly had exposure to a variety of dangerous ch...

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Dad's home!

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